![]() ![]() ![]() It is possible to manage the vision, hearing and balance problems that occur in USH. There is a lot of promising research into gene therapy and stem cell technology and upcoming clinical trials that are bringing hope to families. The treatment of USH is directed toward managing the vision, hearing and balance problems associated with USH.įor most inherited retinal diseases – including USH – currently there is no potential medicine, surgery or ability to cure vision loss. In Victoria, you can access specific genetic eye counselling through the Ocular Genetics Clinic at the Royal Victorian Eye and Ear Hospital or Genetic Eye Clinic at The Royal Children’s Hospital. If you live in another state, it is best to speak with your eye healthcare provider and local clinical genetic service. However, it doesn’t always identify the gene change because many are still being discovered. Genetic testing could help find out the exact gene change causing USH in you or your child. This involves having a small blood or saliva sample collected and sent to a laboratory. Sometimes doctors cannot be certain which gene change is causing USH just by looking into the eye. learn about any appropriate research studies or clinical trials.if you are thinking about starting or extending your family.provide support to help you and your family adjust to living with the condition. ![]() understand what USH could mean for you and your family.If you or your child are diagnosed with USH, it can be helpful to speak to a genetic counsellor. This may help you: Often you will be asked about your child’s general health and if anyone else in the family might have vision problems. This helps better understand their eye problem. To check your child’s eyes, an eye healthcare provider will do various eye tests, photographs and scans. These include: paediatricians (specialists in childhood conditions), otolaryngologists and audiologists (specialists in ears and hearing), ophthalmologists (eye specialists) and allied health professionals. Therefore, diagnosis may require the coordinated efforts of several medical professionals. Diagnosis of USH usually involves testing hearing, vision and balance. ![]()
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